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Danny 23 Nov 2016, 12:01

Hi Carter

I thought that I would check how things were going.

Hopefully, everything is amazing and you are getting used to the limits if your peripheral vision with your new glasses.


Patrick B 10 Nov 2016, 12:27

Hi Carter -- I also have problems going down stairs with my prescription (-25/-26) and have to look straight down through my glasses to see where the steps begin and end. Holding onto the banister also helps. Going up is no problem whatsoever. Your prescription is a lot stronger than mine and perhaps your myodiscs have become quite small. Mine are 25mm which provides a fairly decent view. That said, if you feel more comfortable using a white cane then use it, especially at night. You probably will get used to your new prescription in due course and learn to make some accommodations to it.


CarterC 08 Nov 2016, 18:15

I had given getting a white cane some thought a while ago when I missed a step and fell down a flight of stairs, but I am not sure of it.


Danny 07 Nov 2016, 11:16

Doors m, steps and slopes are a huge problem for me. Plus white radiators on a white wall gives me no sense of contrast.

I was so lucky that my grandad bought me a white cane when I was 8, much that my parent's fury. I did find it amazing that such a simple tool stopped me falling into gaps and it meant that I was able to see where the steps were.

By the time I was 12 and my grandad had died my parents accepted that a cane was useful but it took two broken arms and a dislocated knee before they accepted that I needed it.

Carter, I'd recommend that you try but out. Walking into doors is hugely expensive, broken glasses, and painful


Elliot 07 Nov 2016, 10:32

Carter you will be able to use your vision to your best advantage. If your Rx increases you will adapt to what you are able to see. As lentifan says, everyone bumps into things.

My vision was similar to yours now when I was a teenager. Thankfully it stabilised in my twenties after further increases. I have never struggled with clarity more image size. As the myos' bowls got smaller the field of view decreased somewhat but not as much as feared as the images got even smaller. The important thing to remember is that your vision will be correctable with glasses.

Good luck.


lentifan 07 Nov 2016, 10:13

CarterC

Are your difficulties with bumping into things due to low visual acuity or to a restricted field of vision through myodisc lenses?

Even those of us with good vision can bump into doors, especially if distracted.


CarterC 07 Nov 2016, 06:46

This loss of visual acuity is actually harder than I thought it would be. I had tripped on things a few times before, but in this last week I have tripped twice ran into someone, and this morning I ran into a door. All this is really making me realize how little vision I have left. It feels like running into that door today made the legally blind news really set in.


HighMyopic 05 Nov 2016, 17:19

I just bought a pair of macular degeneration glasses with telescopes to be opened on Christmas. What is the usual power in diopters of these types of binocular telescope glasses?

Front view 1.

[img]http://i.imgur.com/RAkxVyY.jpg[/img]

Front view 2.

[img]http://i.imgur.com/jnYyFOL.jpg[/img]


Patrick B 28 Oct 2016, 13:48

Hi Danny -- Yours is an inspiring story. Your myopia alone should have been enough to deal with! That said, I have a friend who has lost almost all of his eyesight because of retinal problems. Yet, he gets around quite well with the assistance of his very cool guide dog who is a major ice breaker. My own myopia is quite severe but still correctable. Nevertheless, I do know what severe visual limitations are each and every time I take out my contacts or take off my glasses. I'm grateful for the technical advances that allow me to see reasonably well. I also have to reconcile myself to the fact that other visual problems could emerge as I get older. Thanks for sharing your story and let us know how you get on.


Danny 27 Oct 2016, 04:16

Hello, I'm also severely myopic and registered blind. I think my current prescription is only -35 with -2.5 cylinder and a separate pair with -28 for reading. However, I still need size 36 font to read.

There are Two reasons why somone becomes legally blind. For me, it was extreme tunnel vision. In have 5degree field in my good eye, which means that if I can see someone's nose then their mouth and eyes are so extremely foggy that it's not useful.

The other reason is visual actuity. 20/200 means that a blind person would need to stand 20 feet away from something that a sighted person can see at 200 feet. In terms of American Football, this means that if a sighted person is standing on one side of the pitch and can describe what someone on the opposite touchline is wearing, a legally blind person would need to he 6 yards away or less.

For me, the legal definition of becoming "registered blind" didn't change a thing. I knew that my eyesight was worse than all of my friends. I and they had been used to whispering to me in school what the teacher had written on the board that it was never an issue.

However, my parents, the school and society made a big issue out of the legal definition. For them, I'd gone from a teenager who had some problems reading to a completely useless person in a single morning. .

Carter; you will need to decide what definition suits you best.

For me, being blind is just a label. In the same way that I'm make, I'm left handed, I have red hair; all help society categorise me.

Now 30 years later, society accepts my skills first, my vision is a minor thing that people have to make adaptations for.

Plus loads of gadgets that help me around London independently.


30calcat 25 Oct 2016, 16:42

Here is what -48 lenses might look like:

http://public.fotki.com/Russian-GWG/06---glasses-and-lenses/minus-glasses-by-dioptrs/minus-48-glasses-/minus480018.html


CarterC 25 Oct 2016, 07:19

Cactus Jack,

I tried the contacts and glasses thing a while ago, but quickly learned contacts are nor for me. I am a junior in high school. I love math and language arts because they are my strongest subjects, but science comes after them. I know some, but would not mind learning more.


Patrick B 23 Oct 2016, 11:52

Hi Cactus Jack --

First, I'd like to thank you for providing such useful information to eyescene. It's much appreciated by many members of the group.

I have never considered doing a contact lens/glasses combination because I wear contacts very well and use them exclusively about 90% of the time. I also have next to no astigmatism which is sometimes difficult to correct with contacts. I do, however, know of someone with a very high minus who also has a high astigmatism prescription like Carter's. This fellow wears sphere-only contact lenses (-22, I think) with his -5 astigmatism prescription in his eyeglasses. He swears by it. The bonus, apart from near perfect vision, is that he can wear very attractive glasses without the cosmetic downside of thick lenses and "small eyes." It's definitely a very viable option. Maybe contacts aren't a solution for Carter who might also have keratoconus. Only a speculation on my part.

I expect that in Carter's situation, his doctors are awaiting the end of his growth period to see where his eyes might stabilize before considering any alternatives. At his age, future advances in opthalmology might provide a positive solution to what is a case of exceptional myopia.

Thanks, again Cactus, for all of your wise counsel.


Baffled 23 Oct 2016, 06:50

I haven't the faintest idea what Carter's so glasses could look like, or him wearing them or functioning with them on...


Cactus Jack 22 Oct 2016, 19:55

Patrick B,

I was very interested in your comment about using CLs to reduce CarterC's need for very high minus glasses. I have been intrigued for some time with the idea of using CLs to correct a large part of the Sphere in high myopes or hyperopes and putting the rest of the prescription in glasses.

I got the idea from reading about a local Ophthalmologist who, while doing the work up for Cataract patients who wear very high prescriptions, uses CLs as part of the process. Calculating the best IOL power to install during Cataract Surgery, involves both measuring the dimensions of the eyeball very accurately using ultrasound and doing a refraction.

Vertex Distance effects can cause significant errors in refraction when a person needs high double digit correction. He uses CLs of known power to get the patient's vision into a + / - 2 to 3 range, where Vertex Distance is not a factor and he can make very accurate measurements.

Have you considered correcting say all but a few diopters of your Sphere and putting rest of the Sphere and Cylinder in your glasses?

C.


Cactus Jack 22 Oct 2016, 19:20

CarterC,

Sorry it has taken so long to get back to you. Thank you for your reply to my questions. It appears that you have been getting some good responses. I tend to analyze vision problems from an Optical Physics and Mathematical point of view.

I have been thinking about your situation and prescription of:

OD: Sphere -41.50, Cylinder -5.50, Axis 085

OS: Sphere -43.25, Cylinder -4.75, Axis 130

As Patrick B said, image minification, because of Vertex Distance effects, make even a corrected image very small on Retina. That, all by itself, can cause significant reduction in Visual Acuity.

I don't know how far along you are in school. Or, if you have studied any science subjects in school (or on your own) about optics, vision, and how the eyes work. I also realize that, at 16 you must depend on your parents and Eye Care Professionals to do their best for your visual needs.

May I ask a few more questions?

1. How far along in your education?

2. How are you in Math and the Sciences?

3. Do you want to understand more about how your Eyes and Vision work?

C.


Patrick B 22 Oct 2016, 12:14

Hi Carter -- Thanks for your interesting posts. I'm also a very high myope (-25/-26) which isn't as serious a prescription as yours but still serious enough to mean that, like you, I really can't function at all without correction. My prescription tracked yours pretty closely but did pretty much stop changing at -25 when I was in my early twenties. Glasses give me about 20/40 visual acuity; contact lenses about 20/25/30. The problem, as I'm sure you've been told, is the tendency of an extreme minus prescription to create images so small (even if clear!) that they cannot be seen. I suspect that you have reached the 20/200 mark corrected hence your new visual assessment. I'm sure that your eye care team is taking good care of you. Have they ever suggested a combination of glasses and contact lenses? I've finally gone to myodisc lenses since they give me better visual acuity, are lighter, and cosmetically more attractive. BTW, my cousin's daughter had a very premature son who, at seven, is around -8/-9. His extreme myopia is a result of his premature birth and the underdevelopment of his eyes while in the womb. I suspect his myopia will increase during his growth spurt years and could eventually reach the -20s. In any event, his corrected vision now is excellent. Keep in touch whenever you have the chance.


CarterC 22 Oct 2016, 06:41

Doctors have tried to pinpoint the cause of my extreme myopia, but up to now hvae been unsuccessful. As far as my family knows there is no history of this.


GreginColo 21 Oct 2016, 05:56

Thanks Carter for sharing your story and visual history. While it can be very scary and heartbreaking to see a deterioration in any aspect of one's body, be it vision or anything else, it is especially difficult when it is something that you have no control over. Have the Drs given you any reason why they suspect your rapid increases in myopia? Does something like this run in you family? There is an actor named Jon Tyler, who has myopia in the upper -20's who has a male sibling with similar myopia, but 2 other siblings with normal vision, so it is strange how things like this work. Jon has been featured on a couple of blogs so might be a good person to learn more about, and maybe even reach out to, as a means of helping cope with your own situation. You seem to have a very good attitude and spirit and hopefully your reaching out to this site will bring other support and encouragement your way. Regards, Greg.


CarterC 20 Oct 2016, 13:15

I am 16 years old, and live in America.

A bit about my visual history:

I got my first glasses when I was three years old. My right eye was significantly worse, so I had to wear a patch on my left eye to strengthen my right eye. For a while I had semi annual appointments, and always ended up with a stronger prescription. At either six, or seven I started going yearly, and it was the same story. At eight I hit double digits. At eleven I had a larger than usual increase, and the doctor had me start having semi annual appointments. That continued until I was thirteen. At that point my vision was deteriorating too fast for the semi annual appointments, so I started having quarterly appointments. That was also around the point where my prescription hit the negative twenties. At every appointment I remember I have ended up with about about a -1.25 increase. The greatest one I remember was the appointment when I was eleven, that year my increase was -2.75. The next greatest was the one at thirteen tha sparked the quarterly appointments, it was -2.25. Also, when I was five I developed astigmatism, and it too has been gradually getting worse. Other than a retinal detachment when I was thirteen my eyes are, I have not had probelms with my physical eyes. My current prescription is OD: -41.5/-5.5/085 OS: -43.25/-4.75/130.


Cactus Jack 20 Oct 2016, 01:01

CarterC,

That is rough news to hear. Of all the senses, vision is the most precious. Sometimes we don't realize how important the senses are, until something goes bad wrong. The important thing to remember is that human beings are incredibly adaptable and your life is not over. With effort and a good attitude, you can probably learn to adapt to the situation.

If there is anything good in this, it is that there are amazing tools that can allow you to make the best of the vision you have. It is likely that your computer has or can have many aids to make it easier for you to function. Also, depending on where you live, there are likely many resources to help you.'

May I ask a few questions?

1. How old are you?

2. Where do you live?

3. Could you tell us a bit about your visual history?

I am sure I will have more questions, but those are enough for now.

I hope that we can be one of those resources I mentioned above. Our members cover a broad scope of vision related interests with varied backgrounds. A few of our members are Eye Care Professionals (ECPs). I am not. My background is Electronic and Computer Engineering (problem Solving). My knowledge about vision and optics comes from my education and dealing with my own vision problems. None as significant as yours.

Be sure and take the comments, here, with a "grain of salt". Your local ECPs have the best possible knowledge about your situation, but may not have time to answer your questions or just chat with you about your situation. We can do the latter, if nothing else.

Welcome.

C.


CarterC 19 Oct 2016, 20:05

It now seems like I am officially part of this low vision group. I have been gradually loosing my eyesight my whole life. Today I went into my appointment as a high myope, and came out as legally blind. In my gut I always knew that this day was inevitable, but being here is surreal. When I heard the words, I felt my heart drop. This all so new, and I cannot stop thinking about what this means. What now, for me? The more I contemplate this situation, the more questions circulate in my head, and the more anxious I get. I found this site about half a year ago, and up until now have been a reader. Thought there is no better day than today to write my post. I felt sharing this recent development might help me get through the news.


Sotogar 03 Dec 2013, 21:54

Problems with low vision can be because of high blood pressure http://www.bloodpressuremagazine.com/what-is-high-blood-pressure/


Owlish 05 Oct 2012, 22:28

Interesting special glasses; telescope magnifiers

http://statigr.am/p/274375134207394088_2232159


Danny 04 May 2012, 12:48

Hi Elie

I wear +19 glasses and also have hearing aids most of my life. If Ryan isn't around, I'm happy to exchange some ideas.


EliE 04 May 2012, 12:07

Im hoping Ryan C is still around. If so I would love to speak to you about your family''s vision and hearing loss. My soon to be 4year old is +15 and +16 , 20/300 about corrected. Also one implant and one hearing aid. Just wanted some basic info, and if you would recommend anything.

Thank you!


4eyes 30 Oct 2010, 15:27

Geoffrey... I deeply respect and admire you.

I thank you very much guys, for my birthday wishes. I am grounded so I didn't visit this site for awhile.

I am a 18 years old adopted teen who is 60% with correcting eyeglasses but I am still considered low vision due to severe limited peripheral vision. I know I give some hard time to my daddy so I have to admire you when I learn you adopted three.

I really like you.

Anderson.


 25 Oct 2010, 03:20

sorry

its anjana022@gmail.com


 25 Oct 2010, 03:10

4eyes,pls give me your mai id

or mail to me

anjanao22@gmail.com


Geoffrey 15 Oct 2010, 07:26

Just amregular posting to remind about today, White Cane Awareness Day.

I have 5 white cane users in the house, so we are very awaree.

My wife and I are both legally blind, and we adopted 3 young people, now teens, 1 blind and 2 legally blind.

So, please pay attention to all white canes.


4eyes 07 Aug 2010, 08:27

Hi all you guys…

I am not sure this is the right place to put this at all. Sorry. ;P

I’ve just returned from my trip to USA and England because to tell you the truth, the whole trip would turn into a huge waste of time and money and boredom if it were not for the Farnborough International Airshow we went in England and few computers stuffs I got... I loved that more than anything else.

I told my daddy that if I have to, I won't to go to any other "Eyes Treatment thing" ever again. I am almost 18 and I am okay the way I am… so it is okay for me. They say that because the difference for looking close and looking far is too big, there is a gap where my eyes don't work at all. I can tell you I see no difference and I told that to the team UCLA and to those guys in England, but they affirm this is where all my problems lay. They suggested a new pair of eyeglasses, but on "trying them almost two weeks as experience" I simply couldn't make them "work" at all and I think that every now and then I felt very uncomfortable with them. We leave them, (the doctors) I mean, still trying to figure out what to do.

I had to stay "off" glasses for over 8 hours slatted in two days for "precise" measurements of my eyes and the extension and strength of a weirdo nystagmus that all of sudden began to show over the time with more frequencies really impairing me. I hope nobody here has it, this thing is really annoying beyond anything else, and it is THIS nystagmus that is ruining my life and puts me into visually impaired classification. I hate this stigma… ARGH.

Please understand you guy and bear in mind I am not complaining, it is just a need to throw it out. If things goes out of control I might be in serious problem in the future.

I regretted I didn't take a notebook with me so I had to use all my daddy's stuffs and I hate when he says... "Didn't I tell you this or that? Ugh. So I spare him from that. I am crazy about video games and computers so I took the chance and bought several computer parts to that I am assembling a "fuck... real MONSTER" if things goes Ok.

I got an Intel i7 930 Processor AND an ATI HD5870 2GB DDR5 EYEFINITY 6 EDITION SHAPPIRE Video card, with amazing 6 HDMI outputs. I don’t know if you guys like computers at all… but I am nut about them, HEHE and this shopping turned UP an almost boring trip. I’ve the funny feeling my daddy hooks me with those things and I fail to resist. HEHE.

Now I am just taking my breath from those always nasty trips AND assembler my monster.

Anderson

PS: My eyeglasses RX changed just mere +2:50 and +1:75 ADD from the last 18 months. YUPPEEEEE.


Ryan O'C 29 Jul 2010, 11:00

Un-named poster (why no name?)

I do have the highest script in the family at -20, and I'm the only one with prisms. My twin sis, Ryanne, is -17 but is going to the eye doctor next week, she thinks she needs an increase. My Dad is -18.5, Mom is -13, and younger brother, Curt (16) is -16.5. I mentioned Kate in my previous post.

Yes, I do have a hearing problem, as I mentioned before, we all do except Kate. Dad has a profound loss and wears an implant & a hearing aid. Mom is totally deaf, born that way. I have a severe to profound loss and wear 2 powerful aids. Ryanne has bilateral implants, and Curt has a severe loss and wears two aids also.


 28 Jul 2010, 01:22

ryan

what are the prescriptions of other members of the family

yours is minus 20,right?

who has the highest?

do you have hearing problem?


Ryan O'C 24 Jul 2010, 08:12

Un-named poster:

See the Lenses thread, 4 Jul 12:12


 23 Jul 2010, 13:16

what is your prescription Ryan


Ryan O'C 23 Jul 2010, 13:08

I agree with Cactus about low vision & prescriptions. My little sister (14) has the lowest Rx in the family at -12, but the worst vision at 20/150 corrected. Kate lost an eye due to cancer when she was little, and the radiation treatments affected the other eye. Stronger glassses do her no good.

Fortunately, she is not affected by the poor hearing shared by the rest of the family, siblings and parents.


Cactus Jack 19 Jul 2010, 09:24

boy22,

Low vision and a very high Rx are not directly related to one another, but it is not uncommon for a person who needs a very high Rx to also have low vision.

The eyes are biological cameras and the purpose of glasses of any strength is to correct a mismatch between the optical power of the lens system of the eye and the length of the eyeball.

The "film" or "image sensor" in this biological camera is the retina which is actually part of the brain. If there are problems with the retina, optic nerve, or visual cortex. Absolutely perfect focus of images on the retina may not provide good vision.

Assuming the retina etc. are in excellent condition, -30 glasses MAY provide better VISION than +30 glasses because of the optical characteristics of very high power lenses and the effects of vertex distance.

C.


boy22 19 Jul 2010, 05:37

i have a doubt. Whose eyesight will be more worse? A person wearing glasses of minus 30 or plus 30?pls reply.


Cactus jack 18 Jul 2010, 14:37

For a good definition of Low Vision, check out http://www.lowvision.org/what_is_low_vision.htm

C.


4eyes 17 Jul 2010, 20:33

Hi Wei... and everybody.

How to define of low vision? I believe low Vision definition is different in several Countries. I hate that definition but I can not avoid it. I don’t understand exactly how strabismus affects me but to me it has nothing to do with aphakia.

Actually, aphakia is the absence of the crystalline lenses inside your eyes. I was born without it, but usually crystalline lenses are removed from the eyes as I understand it, when they turn into cataract, or when that lens of the eye becomes clouded… sorry I can only guess.

I am not sure I fully understand you.,. sorry again

Anderson.


 16 Jul 2010, 00:47

hello pebblespex,i would like to have email conversation with you.pls post here your email id.


Wei 30 May 2010, 00:48

How is define of low vision? Is crossing eyes of aphakia. Yes is many lens thick!


guest 08 Oct 2009, 18:17

4eyes

can you post/send to my email (dsuk124@walla.com) an images of your eyeglasses?


pebblespex 08 Oct 2009, 14:10

Hi4eyes, I've been following your posts for a long time and I'm really sorry to hear your eye problems are continuing. I'm an extreme hyperope +24 and I know waht it is like to be teased at school. It can be hard for people with very bad eyesight to find good jobs, so you should try to continue with your studies. Keep going, it will get easier for you with time.


4eyes 04 Oct 2009, 14:02

Hello you guys... I just don't this site that often.

I am sorry I forget to name my last posting.

You may not know, but I am an adopted boy with some eyes issues like CFEOM strabismus mixed with bilateral Duane Syndrome and my daddy really does his help me. After 3 years he still thinks great of the Moorefield's Eye Hospital and the Queen Mary University both in London and this is the 3rd years I go to there for treatment. Daddy really believes Moorefield is one of the bests Hospital in the World so I go there for eyes CFEOM studies and treatment. There I learned Duane syndrome is a variety of this Congenital Fibrosis of Extraocular Muscles. I truly don't give a shit about it as that doesn't change my bilateral Duane Syndrome condition nor my stupid and now "Bizarre" strabismus, as my muscle eyes are actually badly stiffed and those Stem cells thing soundly failed.

But it was there, in England, I got my new glasses and they are a bit stronger and they were assembled differently that gives them an appearance of a bit thinner.

Those lenses, over +32:00 were made by Carl Zeiss laboratories with a small conventional 15 Base Out prisms blocks and then were added over +13:00 Press On bottom Optical lenses from the same Carl Zeiss laboratory and only later the 35 Prisms as BO Press-On prisms by Zeiss Company was added. Both glasses looks beautiful and precious pieces. I've learned they were real difficult to be confectioned and required some skilled hands to be beautifully made.

I had eyes surgeries last July at Moorefield, for correcting that nasty strabismus, but that apparently didn't work. I sworn my daddy I wouldn't complain anymore about this eyes shitty. But after last July when my eyes treatment really got weirdo just after the strabismus two surgeries and after I got steam cells that screwed me up I am real sick. Not that I am complaining but I am really sad because my school restarted two weeks later in August and now I'm having fucking Saturdays school classroom, and I still feel weird... Only the whole shit seems not working at all and I am sad and I shouldn't be because I'm still can play and I'm just returning from my futsal soccer game.

I hate school more than anything, because school sucks.... I am fed up with bullying and things and now, having to go to school by Saturday is nearly driving me mad and I look desperately for any excuses for not going to.

Hopefully I will finish school this year and I'll stop going to school... Hopefully I'll get some job as I'm nearly 18 and nobody will stops me from getting job, and IF that happens... MAN, OH MAN, I'll find a place I can pay for me to sleep and eat and I'll call it my own.

That will be a dream coming true. MY OWN PLACE.

Sorry I'm bothering you all with this shit.

Tchau you guys


Martyn 03 Oct 2009, 12:39

HI 4eyes, don,t get so upset if you have a good eye doc, her or she will look after your eyes, you certainly have been dealt a crap card in life with such poor vision, be positive, enjoy life, while your young, you will cope well with your vision, more often than not its fear og the unknown that scares us, so leave the future to itself and enjoy today. Good luck onm your op, i,m sure it will be fine.


 03 Oct 2009, 11:33

Would someone wearing myodiscs be considered to have low vision?

Well, I don't have this type of lenses because I am aphakic and I use strong eyeglasses lenses, but actually I am considered Low vision due to severe crossing eyes that limits my vision field very much together with my glasses.


ehpc 29 Apr 2009, 10:05

How you doing Marie? You are cool :) Pete


All4Eyes 29 Apr 2009, 09:14

EHPC: I don't know if they're related, but I had a cousin named Katie. The exception to the rule, she was a hyperopic bookworm. She also had surgery when she was two for crossed eyes AND her mother (my aunt) was an optician (pity she and my Mom had a falling out).


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